Sad boy cuddling his toy

A Poem for autism

Autism is a lifelong developmental disability that affects how a person communicates with, and relates to, other people. It also affects how they make sense of the world around them. This poem reflects how one child tries to communicate with his parents, how he feels and shares his love for them. Dear Mummy, don’t you…

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Breastfeeding a baby with down syndrome

Breastfeeding your baby with Down Syndrome

Breastfeeding your baby is a wonderful gift you can give.  Breastfeeding can be a valuable and rewarding part of caring for your baby and contribute to their well-being. Babies with Down Syndrome experience special benefits from breast milk and breastfeeding beyond the many advantages to typical newborns. Breast milk provides extra protection against infections and…

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Jack sat with his mum

Down syndrome: screening for breathing problems

Researchers at the University of Southampton are planning to investigate tests for a breathing disorder that affects babies and children who have Down syndrome while they sleep. They aim to provide the missing evidence so that doctors can introduce affordable and simple routine screening. The project, led by sleep specialist Dr Catherine Hill, is funded…

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Rough Guide

Making halloween horror accessible to all

Visit some of Britain’s spookiest attractions for a fun and frightful, family day out this Halloween with The Rough Guide to Accessible Britain.  Whether you fancy walks in the woods, white knuckle rides or wild animals, the guide’s reviews of accessible Family Days Out will help you find something the whole family will enjoy! All…

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Thomas - featured in Go Folic

The importance of folic acid

New film explains the importance of folic acid to any woman who can have a baby A new film entitled ‘I am a …’ has been released by the national charity Shine as part of their campaign Go Folic! which aims to communicate the message that taking folic acid is essential in preventing birth defects…

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Newborn baby

World’s biggest ever cleft lip and palate research programme

Over 1200 babies a year are born with cleft lip and/or pallate, and it is one of the most common birth defects in the world, with little still known about the causes of cleft lip and palate Parents of children born with a cleft lip and/or palate are being invited to enrol in the world’s…

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Open day about Epilepsy

Free workshop for special educational needs

National charity Young Epilepsy is pleased to invite parents and carers from across England to a workshop about special educational needs funding. The one-hour workshop, which is part of a half-day Open Day at the charity’s headquarters, will take place on Wednesday 14 March, and will be led by Deborah Hay, a barrister at Hardwicke…

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Child development

Living with cytomegalovirus

An unidentified infection, cytomegalovirus (CMV), in Kim Crook’s pregnancy brought about her son Ryan’s disability. It started with a bad pregnancy I had a pretty rough pregnancy, feeling tired 24/7 and with sickness throughout. I just thought I was one of the unlucky people who have a bad pregnancy. I even left my job as an auxiliary nurse at…

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Special needs

Invasive procedures for genetic diseases

Towards safe, early non-invasive prenatal diagnosis: expert recommendations To perform a definitive diagnosis of Down Syndrome or other forms of genetic disease in the fetus, doctors must use an invasive technique to sample fetal DNA directly, either from the placenta (chorionic villus sampling, or CVS) or the amniotic fluid around the fetus (amniocentesis). Unfortunately these…

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MP900385800

Cystic fibrosis – How it feels

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this … Welcome to Holland When you’re going to have a baby, it’s like planning a fabulous vacation trip…

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