posts related to: special needs

Thomas - featured in Go Folic

The importance of folic acid

New film explains the importance of folic acid to any woman who can have a baby A new film entitled ‘I am a …’ has been released by the national charity Shine as part of their campaign Go Folic! which aims to communicate the message that taking folic acid is essential in preventing birth defects…

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National Deaf Helpline

Evening Helpline support for families of deaf children

The UK’s only Helpline for families of deaf children, and the professionals who work with them, is now open Monday to Thursday 9:30am-9:30pm, and on Friday 9:30am-5pm. Parents of deaf children can now get access to expert information on childhood hearing loss in the evening, as the National Deaf Children’s Society (NDCS) extends the opening…

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Open day about Epilepsy

Free workshop for special educational needs

National charity Young Epilepsy is pleased to invite parents and carers from across England to a workshop about special educational needs funding. The one-hour workshop, which is part of a half-day Open Day at the charity’s headquarters, will take place on Wednesday 14 March, and will be led by Deborah Hay, a barrister at Hardwicke…

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Special needs

Invasive procedures for genetic diseases

Towards safe, early non-invasive prenatal diagnosis: expert recommendations To perform a definitive diagnosis of Down Syndrome or other forms of genetic disease in the fetus, doctors must use an invasive technique to sample fetal DNA directly, either from the placenta (chorionic villus sampling, or CVS) or the amniotic fluid around the fetus (amniocentesis). Unfortunately these…

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Cystic fibrosis – How it feels

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this … When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy.…

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cysticf11.jpg

Cystic fibrosis : special children

Mother of three Clare Thomas, whose son Jordan suffers from cystic fibrosis, says that special children are sent to special parents. How we found out Jordan was diagnosed with cystic fibrosis (CF) at five-and-a-half weeks, after failing to thrive. He had to have three sweat tests (which are used to diagnose CF as a CF person has much…

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Young boy reading

Autism : real life story

Caroline Northeast says her son Julian’s autism is what makes him such a special person. Julian was diagnosed on the 7 June 2004 with mild-to-moderate autism. He has the triad of conditions associated with autism but the main component is his lack of understanding and inability to acquire English language. Initially, my husband and I weren’t worried…

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Raising a child with autism, asperger's syndrome and ADHD

Raising a child with autism, asperger’s syndrome and ADHD

Elaine Carey talks about bringing up two boys who have lie on the Autistic Spectrum which include Asperger’s syndrome and ADHD. Diagnosing my boys I have three children, two boys and one girl. The two boys lie on the autistic spectrum, which consists of autism, Asperger’s Syndrome, high functioning autism, ADHD (Attention Deficit Hyperactive Disorder), ADD (Attention…

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Special needs

Living with Down’s Syndrome

When Anne-Marie and her husband heard their unborn baby had Down’s their first reaction was to have him adopted after birth. However, some moving scan pictures changed their minds… Finding out … I first knew something was wrong with my baby at my 20-week scan. His left ventricle in his brain was dilated so I had to…

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Special needs

My son, George, has Down’s Syndorme

    After her first pregnancy ended in a miscarriage, Carole Arnold was excited when her son George was born by emergency caesarean section at 36 weeks. But when he was just a couple of days old the doctors told her that George had Down’s Syndrome. Carole says, “I remember starting to cry before the…

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